Rather Be Fish'n

Day 65 or is it 66 (?), awaiting the call for Anna's double lung transplant.

Hey, yes we wait and wait and wait. Yesterday we discussed this situation. Things could be worse. We do go a bit ga ga ga crazy from time to time. I do get impatient and want it now like a little child wants her toy. But, we do have fun too. We are making the most of this. We can do this for a couple of fortunate reasons. One, the medical center is so close that we do not have to do yucky travel whenever Anna has an appointment or blood draw. Yesterday we had a lovely brunch at Barone's in Menlo Park and then dropped by the lab for a blood draw, civilized, I must say.

Another reason is that Anna has stayed so very stable, as we have repeated over and over. This can not be emphasized enough. Even though she is now at transplant level after a regular decline, she is keeping her base line. This helps so much. I am not terrified every time I see her with slips here and there. We are used to where she is now. Strange how you get used to these things. What is abnormal becomes normal pretty quickly.

Another reason is that we have the luxury to be and take our time and take care of ourselves because we have so much support. Behind the scenes of our lives are our honeys who take care of the nitty gritty that we can not so that we can do what we do.

Another reason is that we have Sara, the wonderful. She keeps us loved. Sara is such a great friend to Anna and wonderful daughter to me. She helps, is inspired by this process and is there when ever we need her.

Another reason is that we like each other. Imagine that. Mom and daughter have too much fun together. Are we ever cross with each other? Only on occasion do we do a little grumble but mostly we just fit like a glove together. We are committed to making this work. This is the project of our lives. That has been so for such a long time and we are such good friends. There is so much we enjoy together. It used to be thrift shopping and fishing and now it is eating and watching "quality" TV. The activity has had to change because of the situation but we are together, having fun when ever we can, enjoying each other so long as all is calm while we wait for the call............. that is how it is.

We so hope it stays this way. We do not want another stint in the hospital for a long CF visit before transplant. That is what we are trying to avoid because you know, that is not really fun. We want to enjoy this moment of calm, get the most of the day and get on with it. There is my impatience again. Well, I guess I should not give that up because it is the push, the impetus to move through this, to get to the other side. Impatience has its place. It stays with me because I want so much for for my daughter and me to get on with other parts of our lives. We want to go fishing! We miss fishing! Come on lungs! Time to go fishing! (don't worry it is catch and release.)