Miracle On Order.......Miracle Received

(edited, January 14, 2011) Reflections of a CF Mom... I am the mother of a 29 year old daughter with a double lung transplant. Anna's old lungs gave out due to cystic fibrosis. On November 22, 2010 Anna received the miraculous gift of new lungs. We are adjusting and recovering from the end of life battle with CF and the intense transplant surgery. I am watching Anna heal and begin a new life with her strong and healthy new lungs. NEW LUNGS, NEW BREATH, NEW LIFE

Wednesday, November 24, 2010

Anna Needs Your Prayers........

OK Anna Banana Bunchers............ Anna's Dad just told me to rally the troupes. Anna's kidneys need extra support to heal from the onslaught of the surgery. If you can clear your mind and focus on healing energy please send it to Anna and her kidneys. Let us see if we can keep them from having to do dialysis. Lets heal those kidneys with our prayers and thoughts of healing.........

Ready, set, go..........................

4 comments:

UnknownNovember 24, 2010 at 8:54 PM
Consider me rallied. Gotta go light a candle.
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UnknownNovember 24, 2010 at 9:10 PM
All of the Millers, Lin, Megan, Sarah and Andrew are with you and sending healing love to all... especially Anna's kidneys. MM
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Rick SteeleNovember 24, 2010 at 9:27 PM
Beautiful pictures of Anna!!! Mom and sis ain't so bad, either (Dad, too)!

I've been focusing on a powerful clean waterfall washing away impurities from Anna's system. Can't wait to see that sweet face again!

Anna, we love you!

Carrie Steele
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Isabel Stenzel ByrnesNovember 25, 2010 at 10:20 AM
My prayer today: Anna,breathe. Anna, pee.Anna, breathe, Anna, pee. I know this is scary, but I have confidence her body will adjust. Robin, I'm pleased you went home to rest. You are in it for the LONG haul! I love you and am so grateful for your family's friendship this Thanksgiving, and for Anna's new lease on life. I will pray for Anna!xo Isa
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What does it mean to have end stage CF and then to receive a successful double lung transplant? What is the difference in life style and quality of life?

With end stage CF Anna • is tied to oxygen 24 hours per day • doing at least three vigorous hand percussion treatments per day and many aerosols spending about 5 1/2 hours per day on respiratory therapy and dependent on a family member or friend to deliver the necessary care • coughs that rack her whole being and cause her to loose her breath • is also dependent on family assistance with daily chores such as groceries, cooking and housekeeping • has lags of energy and little general get up and go • manages all medications including ordering and scheduling O2 deliveries • cares for CF Related Diabetes and her high calorie needs as best as possible • must be regimented and scheduled in eating due to the percussion treatments as food must be digested prior to therapy, no food when she gets up, must wait until after morning treatment, eats lunch if there is time in the afternoon, and dinner at 6PM so that evening treatment, nebulizer sterilizing, etc. is done in enough time to get to bed before midnight, late night snack is allowed • go to appointments, see a friend, do something fun, go for a walk usually only between 12 and 4 in the afternoon and some down time available from 7PM to 9PM • this all changes if her lungs are exacerbated and she needs to go into the hospital for two weeks with round the clock IV schedules and 4 treatments per day.

After A Successful Double Lung Transplant Anna • will be able to breathe with normal lung function and no need for O2 or percussion therapy • will need to take immuno suppressant drugs religiously forever • will need to be vigilant about germs • will have to deal with adjusting to the new medications • will need to visit the hospital if she is ill for viral agents and antibiotics as needed • will still deal with her CF Related Diabetes and CF intestinal issues • will no longer be dependent upon family for care • will be able to begin a new life with energy • will be able to go and travel where ever she chooses • will feel more normal than she ever has in her entire life............. can I say more?

Guarantees: There are none but statistics show that there is nearly a one hundred percent chance that lungs will be available for Anna in time for her. Success depends on an excellent medical transplant team, Anna's vigilance in self care, the acceptance of the new organ by Anna's immune system, and the continuation of Anna's story.

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Wednesday, November 24, 2010

Anna Needs Your Prayers........

4 comments: