Day 15 post transplant.......
Every day in the hospital is busy. No time to rest but at least Anna will be coming home to the apartment, our family crash pad tomorrow! Today was all about preparing for the event. In the afternoon we spent about an hour in training about what this situation is. It is quite stunning to think that we are here, we are on the other side. Makes you go, hmmmmmmmm, wow.
After the hospital preparations Doug and I headed to the apartment to rearrange furniture and get it ready for Anna. It is now ready, a quite place to heal without alarms, and beeps and prods and people constantly coming into the room with their particular discipline giving Anna and very best of care.........only thing missing was, rest.
But, this will be a better place to live even though Anna and I will be very busy. She will keep her pic line in her arm as she will need blood draws everyday. We will also go for dialysis three times per week until they tell us her kidneys are fully recovered. And, we will go to clinic twice a week. There will be a lot of time spent in the car. I also have the wheelchair I used for my mom and a few times for Anna when she had her old lungs and could not breathe very well. Each week we hope that she will get stronger.
One of Anna's obstacles now is that she hates the mask that she needs to wear to protect her from the bugs and stuff in the air. She is just going to have to make friends with that mask. Maybe we will do a little art therapy on a mask and decorate it pretty.
When we do leave the hospital it will feel like we are on the way to a new life, not one with difficulty but one, with lightness and new time.................... it is what we have been dreaming about and wishing about, it is that miracle I ordered.
Every day in the hospital is busy. No time to rest but at least Anna will be coming home to the apartment, our family crash pad tomorrow! Today was all about preparing for the event. In the afternoon we spent about an hour in training about what this situation is. It is quite stunning to think that we are here, we are on the other side. Makes you go, hmmmmmmmm, wow.
After the hospital preparations Doug and I headed to the apartment to rearrange furniture and get it ready for Anna. It is now ready, a quite place to heal without alarms, and beeps and prods and people constantly coming into the room with their particular discipline giving Anna and very best of care.........only thing missing was, rest.
But, this will be a better place to live even though Anna and I will be very busy. She will keep her pic line in her arm as she will need blood draws everyday. We will also go for dialysis three times per week until they tell us her kidneys are fully recovered. And, we will go to clinic twice a week. There will be a lot of time spent in the car. I also have the wheelchair I used for my mom and a few times for Anna when she had her old lungs and could not breathe very well. Each week we hope that she will get stronger.
One of Anna's obstacles now is that she hates the mask that she needs to wear to protect her from the bugs and stuff in the air. She is just going to have to make friends with that mask. Maybe we will do a little art therapy on a mask and decorate it pretty.
When we do leave the hospital it will feel like we are on the way to a new life, not one with difficulty but one, with lightness and new time.................... it is what we have been dreaming about and wishing about, it is that miracle I ordered.
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