About My Links

I am taking the opportunity to list links to other web pages on my blog. As you can see under the "about me" there is a "gadget" that lists links. Here is what they are about. There are 13 links. Hmmm seems appropriate as that is the number attributed to my Anna as she was born on the 13th.........(not saying I won't add other links later, though). The links are in alphabetical order, not in order of importance or where you should go first.

Anna's Blog: Anna Banana's Variety Show was started a while ago but Anna had stopped blogging. Now she is taking it up again. She also thinks it is important to log in her experience. So, tune in to her to get it from the source.

Breathing Room: The Art of Living with Cystic Fibrosis is a fantastic organization that gives artful voice to the CF experience. Michelle Compton is the founder and exec director. Visit the site to see interesting photographic images of living with CF and accompanying poetry. Michelle had a lung transplant well over 10 years a go. She is a good friend and huge inspiration.

CF Concert in Japan: While in Japan in Oct 2009 I had the honor of presenting Healing Flags to Japanese CF families (there are very few in Japan) at a fund raising concert in Sendai along with my friends Ana and Isa and their documentary film crew. It was a special, special time. This is a video clip produced by The Power of Two.

CF Courage Dolls: This is a project I organized. 9 CF moms (one aunt) spent 9 months creating courage dolls to support each other. CFRI created this web page to share the project with others.

CF Singing Sisters: This video clip is from a very recent TV show where two sisters with CF sang. They are talented and sweet. A heartful moment.

Conversations with CF Moms: This video clip is of a group of us moms filmed by the Power of Two documentary sharing our experience with you.

Cystic Fibrosis Research Inc.: This is the organization that has been the support life line for our family. I served on the board for 10 years when Anna was little and recently helped with the newsletter. If you want to make a donation this is the place.

Healing Flags for Japan: CFRI created this web page to share my Healing Flags project that CFRI members participated in.

Organ Donor Registry: If you live in California and are not already registered as an organ donor please visit this site and do it now. Give the gift of life if something tragic happens to you. Talk with your family of your wishes and encourage others to do the same.

Our Family on CF Voice: We were interviewed at the CFRI conference for this video clip on a very interesting web site that also has other very good information and interviews. Click on the "All In the Family" button on the right when opening the page.

Tess Dunn: Enjoy the music and talent of Tess who has CF, lives in Santa Cruz and is the daughter of a CF mom friend.

The Power of Two: This is going to be a great documentary film about CF and organ donation to be completed this year and released next year.

The Song, Breathe: On the CF Voice web site this song and music video is very moving.