Years Ago
The Modlin family with Isa Stenzel and Ana Stenzel behind the camera.....
Day 83........
Over all we were so impressed with the beautiful and professional quality of the film. It will be a feature film poised for film festivals, the TV and perhaps an Oscar? It is not yet completed. They have another month of editing to do so it is going to be so amazing when it is done. As Anna says, it is going to kick bootay!
Ana and Isa are so engaging, articulate and fun to watch. Their message is poignant and universal. They were courageous children and teens who met their challenges battling CF with creativity and determination. Their lives as adults have shown them able to beat the odds with miraculous events occuring in their lives. It is very inspiring to hear their story, in and of itself. The movie also discusses the international need for organ donation and the power of transplantation. It is riveting and emotionally engaging.
Anna Modlin plays herself. She is fully transparent with what it is like to live with this disease choking her and stealing her breath. It shows CF out of the closet. I am so proud of her willingness to share her life pre-transplant with the world. It will help people to understand CF, lung disease and the experience of waiting for transplant. I play myself too. I am the mother by her side who won't give up. We are fighting for her life together. The movie focuses on our role together as another power of two, but, everyone is really involved in this struggle. Doug, Sara and Casey are also equal partners in this too. You will not see them on the screen in the film but we are all playing necessary parts at this time and always have as we meet the challenges of CF.
The feedback was tremendous. I did not quite know how to let this all in. It is a bit daunting to see yourself on the screen for the first time while in the company of so many. But, this is about the issue, not me. This is about what it takes to participate in the miracle of transplant. It is a test of the metal. So, once again, I dedicate all of this to the mothers, fathers, sisters, brothers, friends and lovers who are by the side of someone they love fighting for life and hoping for a miracle. Anna represents the patient on the list, all of the patients on the list. May a miracle come for all of them.
If you want to be a part of this there are two things that you can do. One, my friend, Wendy, just emailed me to tell me she finally registered officially as an organ donor. You can do this too, easily as you sit there reading this. Go to Donate Life (click) and find out how in your area. Now that you have stopped putting that off, talk with your family and friends. Discuss the hard parts of "if I should die". We all will, you know. Some of us will be able to leave this life with the lucky opportunity to offer life to others upon our passing. This was even true for my 85 year old mother whose skin was donated to burn victims upon her death. This is more likely to happen if you sign up as a donor and make your wishes known to your loved ones. Encourage the important people in your life to do the same.
The other thing you can do is make a donation while you are still here! The Power of Two movie is in need of more financial support to complete the film They still need about $300,000. If everyone chips in a bit it will make a huge difference. Or if you or someone you know wants to make a major contribution to ensuring the distribution of this powerful film then please do. All donations are tax deductible. Go to The Power of Two Movie (click) and then click on the donate button.
Thank you, Thank you, Thank you.................
Excellent scene!! Ah, it looks like the home in nostalgic Japan.
ReplyDeleteThe low dining table is enclosed and the family well-being. It is said "CHABUDAI" in Japanese. However, it has become a dead language now.
from JPN.